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Let's try this again... let this be Steven's last surgery. No more hoping for the best. We are ready to be at our best. Cheers to moving forward. πŸ’šπŸ•Š #sourpatchkidneys #kidneytransplant #graftlife #nomoresurgeriesplease #olivebranch #cutecouple #lovehim
Today is the one year mark, the day I had my first total ankle replacement surgery Feb 19th 2016, only to be taken out several months later. My 6th surgery was Feb 1st 2017, a few weeks ago and hopefully it will be the last. I'm not out of the woods yet, but so far so good!  It will still be several more months before I begin the long process of physical therapy and begin to walk again.  It has been hard but I've managed to stay optimistic most of the time. The first 5 surgeries were hard along with a 2 month stay at Orchard Park so they could administer IV antibiotics twice a day for a staph infection. Complications are no joke:) But for some reason this last surgery has been the hardest, and not just the pain but I think the emotional part has caught up to me! Up until this point when asked how I was doing, I would mostly say better, good or fine which I really felt. This time when asked I told some people the truth which is not so great, painful, or I feel crappy! I know not everyone who asks really wants to know, so I'm sorry to those whom I did, that didn't want to know or were uncomfortable and didn't know what to say :) Don't worry, I haven't gone to the dark side and I'm not in a total depression! πŸ˜€ I will get better and will feel better soon I am sure, but right now-not so much. After a hard year, I'm giving myself permission to rest more, not be upset if I'm not okay, watch Hallmark movies, watch funny animal, baby pictures and videos so I can laugh and smile.  I do appreciate the calls, and to my children, please call me often, it really lifts my spirits.❀ The good and bad thing is the cool pink cast I just got last week, (I just need bright pink nail polish) but it's really uncomfortable!  So, since the doctors won't put me into a induced coma for a few months, I'll just keep fighting through and wait to start walking again! 2017 will be the year I walk again! Just say'n!  I feel a lot of love for all of your help and well wishes! Thank you!! #willwalkoneday #wheelchair #downbutnotout #wheelchairlife #prettyinpink #painsucks #tiredofbeingsickandtired #enoughalready #nomoresurgeriesplease #nomoresurgerieshopefully #willbealright #oneyear
Today is the one year mark, the day I had my first total ankle replacement surgery Feb 19th 2016, only to be taken out several months later. My 6th surgery was Feb 1st 2017, a few weeks ago and hopefully it will be the last. I'm not out of the woods yet, but so far so good! It will still be several more months before I begin the long process of physical therapy and begin to walk again. It has been hard but I've managed to stay optimistic most of the time. The first 5 surgeries were hard along with a 2 month stay at Orchard Park so they could administer IV antibiotics twice a day for a staph infection. Complications are no joke:) But for some reason this last surgery has been the hardest, and not just the pain but I think the emotional part has caught up to me! Up until this point when asked how I was doing, I would mostly say better, good or fine which I really felt. This time when asked I told some people the truth which is not so great, painful, or I feel crappy! I know not everyone who asks really wants to know, so I'm sorry to those whom I did, that didn't want to know or were uncomfortable and didn't know what to say :) Don't worry, I haven't gone to the dark side and I'm not in a total depression! πŸ˜€ I will get better and will feel better soon I am sure, but right now-not so much. After a hard year, I'm giving myself permission to rest more, not be upset if I'm not okay, watch Hallmark movies, watch funny animal, baby pictures and videos so I can laugh and smile. I do appreciate the calls, and to my children, please call me often, it really lifts my spirits.❀ The good and bad thing is the cool pink cast I just got last week, (I just need bright pink nail polish) but it's really uncomfortable! So, since the doctors won't put me into a induced coma for a few months, I'll just keep fighting through and wait to start walking again! 2017 will be the year I walk again! Just say'n! I feel a lot of love for all of your help and well wishes! Thank you!! #willwalkoneday  #wheelchair  #downbutnotout  #wheelchairlife  #prettyinpink  #painsucks  #tiredofbeingsickandtired  #enoughalready  #nomoresurgeriesplease  #nomoresurgerieshopefully  #willbealright  #oneyear 
This little kitty can grow stones in her bladder!...just got home from X-rays...sigh. Is there a cat deity one can worship? I need a miracle right meow. #nomoresurgeriesplease
This little kitty can grow stones in her bladder!...just got home from X-rays...sigh. Is there a cat deity one can worship? I need a miracle right meow. #nomoresurgeriesplease 
Forgot to post this last week, for everyone following his progress. Diesel aced his two month check up. X-rays look great! No more staph infection. He's cleared for unlimited leash walks, hills, and stairs. Still two months from jogging on a leash. He's always so happy to go to the ortho. #mrdieseldog #aclrehab #aclrecovery #tplosurgery #roundtwo #pibble #pitbull #pitbullsofinstagram #nomoresurgeriesplease
I never thought I'd be the one posting this but, I have very few fears. Snakes, heights, and that's pretty much it until this year. Guys, the ice is terrifying me! Not driving in it but walking. #nomoreice #cannotfall #nomoresurgeriesplease
I never thought I'd be the one posting this but, I have very few fears. Snakes, heights, and that's pretty much it until this year. Guys, the ice is terrifying me! Not driving in it but walking. #nomoreice  #cannotfall  #nomoresurgeriesplease 
"You'll never convince me there is a hopeless situation or there is any finality in any success or any failure" -Carlos Ghosn-  I always try to stay alert as possible because life and your health can change for the better or for the worse in a heartbeat. #takecareofpeoplethattakecareofyou #wrightwaytraining #npc #npctexas #bodybuilding #quadsgymtexas #ifbb #superheavyweight #nomoresurgeriesplease #stayinghealthythisyear #havingfundoingit
It sure has... ready for 2017 to bring me nothing but happiness, as I truly cannot take any more of the sad.  #nomoreheartache #promisetolovemyself #promisetomychildren #infantloss #VivienneGray #mychicken #mymaxo #healing #recovery #nomoresurgeriesplease #rainbowsandmotherfuckinsunshine
Sounds good to me πŸ˜˜πŸ™ #DoneWith2016 #positivity #NoMoreSurgeriesPlease #Happiness
It's been 5 years today since my last surgery πŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»This photo was taken a few days after I got discharged. My amazing brother flew across the country to come take care of me. I don't know what I would have done without him. I was so weak I needed a nap after just walking from the car down to the beach. The man has so much patience. This photo reminds me of how far I have come since my diagnosis and restores hope that even though I'm not in remission, maybe the worst of my #crohns battle is over #invisibleillness #nomoresurgeriesplease #positivity #crohnswarrior #crohnsdisease #loweringstress #healthierself #bringon2017 #healthy #crohnsfit #crohnie #crohnsawareness #shoutouttoallthebrothers #thankful #family #brotherlove #suninoureyes #beachfun #citybeach #perth
It's been 5 years today since my last surgery πŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»This photo was taken a few days after I got discharged. My amazing brother flew across the country to come take care of me. I don't know what I would have done without him. I was so weak I needed a nap after just walking from the car down to the beach. The man has so much patience. This photo reminds me of how far I have come since my diagnosis and restores hope that even though I'm not in remission, maybe the worst of my #crohns  battle is over #invisibleillness  #nomoresurgeriesplease  #positivity  #crohnswarrior  #crohnsdisease  #loweringstress  #healthierself  #bringon2017  #healthy  #crohnsfit  #crohnie  #crohnsawareness  #shoutouttoallthebrothers  #thankful  #family  #brotherlove  #suninoureyes  #beachfun  #citybeach  #perth 
Just got off work and look whose back home after her first surgery. She took it like a champπŸ’ͺ🏼. I'm glad everything came out okay.  #shesachamp#littlesister#roadtorecovery#nomoresurgeriesplease#likemotherlikedaughter#imthecaretaker#yuma#yumaaz
Ahhhh so good to be able to get back here again.... Starting slowly but surely!!!! #SVT #postablation #svtnomore #timeforahealthyseason #nomoresurgeriesplease
She's finally home and resting after her surgery this week. So we are watching Halloween movies on this Saturday night.πŸŽƒπŸ‘»πŸ“Ί #saturdaynight#roadtorecovery#nomoresurgeriesplease#momanddaughter#halloweenmovies#halloween#yuma#yumaaz
It's nice when your adventure partner is able to adventure again. #nomoresurgeriesplease
Sleeping in Mommy and Daddy's bed by himself because mommy has to sleep sitting up on the couch tonight.  #HeNeedsAHaircut #NoMoreSurgeriesPlease
I'm pretty sure after surgery this view is the best medicine. The nature of our own yard. Surgery went well although I am starting to feel very sore and discomfort man I know it will be worth it! Plus I have mom and dad this weekend to care for me and tonight I have one sexy care giver. That hottie husband of mine does a dang good job!! I'm just a survivor in love!! #soulmate #healing #myforever #nomoresurgeriesplease
I'm pretty sure after surgery this view is the best medicine. The nature of our own yard. Surgery went well although I am starting to feel very sore and discomfort man I know it will be worth it! Plus I have mom and dad this weekend to care for me and tonight I have one sexy care giver. That hottie husband of mine does a dang good job!! I'm just a survivor in love!! #soulmate  #healing  #myforever  #nomoresurgeriesplease 
220/366 the plan was to plant a small veggie garden this year. However, I just haven't been up to it but I did manage to help the neighbour eat numerous tomatoes. "Winner winner m, tomato dinner!" ... or something like that.  #chronicpain #chronicillness #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #spinalcordinjury #spoonielife #spoonie #tiredofbeingsick
219/366 ... but time and chance happen to them all. - Ecclesiastes 9:11  #brokenandwhole #tryingtobepositive #nomoresurgeriesplease #spinalcordinjury #tiredaf #spoonie #spoonielife
The whole is greater than the sum of its parts - Aristotle  When I first pondered this quote in university, I interpreted it as: Separate elements may have meaning of their own. Put them all together however, these meanings can change and form a single, completely new (greater) one.  So although the we see a person's hair, skins, eyes etc, we also see a human being.  But what happens when some of our parts are broken while others keep braking? Do we see ourselves and others as less of a human being?  The journey of living with a chronic illness is different for everyone. For me the last two years have been the hardest. I'm just not bouncing back as quickly as I used to. I have drive and the will to find the positives but I've lost the fire in my belly .... I'm physically broken and just so incredibly exhausted. I keep hoping that sleep will help re-energize me but it's the kind of exhaustion that runs so deep, no amount of sleep with satiate. It's like having permanent flu symptoms.  I think for the first time in 10 years, I see myself as a physically broken human being... and I don't like it.  #brokenandwhole #brokenandbeautiful #chronicillness #chronicpain #spinalcordinjury #nomoresurgeriesplease #tryingtobepositive #spoonie #spoonielife
The whole is greater than the sum of its parts - Aristotle When I first pondered this quote in university, I interpreted it as: Separate elements may have meaning of their own. Put them all together however, these meanings can change and form a single, completely new (greater) one. So although the we see a person's hair, skins, eyes etc, we also see a human being. But what happens when some of our parts are broken while others keep braking? Do we see ourselves and others as less of a human being? The journey of living with a chronic illness is different for everyone. For me the last two years have been the hardest. I'm just not bouncing back as quickly as I used to. I have drive and the will to find the positives but I've lost the fire in my belly .... I'm physically broken and just so incredibly exhausted. I keep hoping that sleep will help re-energize me but it's the kind of exhaustion that runs so deep, no amount of sleep with satiate. It's like having permanent flu symptoms. I think for the first time in 10 years, I see myself as a physically broken human being... and I don't like it. #brokenandwhole  #brokenandbeautiful  #chronicillness  #chronicpain  #spinalcordinjury  #nomoresurgeriesplease  #tryingtobepositive  #spoonie  #spoonielife 
217/366 I could really use a win.  I've had a string of really crapy set backs lately. The last 10 years of coping with my failing health are taking a toll. I'm tried of the fight .... I'm not sure how I'm doing but I'll keep fighting.... it's just ... I could really use a win.  #couldreallyuseawin #chronicpain #tiredofbeingsick #chronicillness #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #sickandtiredofbeingsickandtired #tryingtobepositive #spoonie #spoonielife
217/366 I could really use a win. I've had a string of really crapy set backs lately. The last 10 years of coping with my failing health are taking a toll. I'm tried of the fight .... I'm not sure how I'm doing but I'll keep fighting.... it's just ... I could really use a win. #couldreallyuseawin  #chronicpain  #tiredofbeingsick  #chronicillness  #invisibleillness  #butyoudontlooksick  #nomoresurgeriesplease  #sickandtiredofbeingsickandtired  #tryingtobepositive  #spoonie  #spoonielife 
Oh, you know... Just checking that my arteries are still staying open. πŸ˜’πŸ˜’πŸ˜’ #nomoresurgeriesplease #medianarcuateligamentsyndrome
215/366 Waiting .... Sometimes I feel like l'm waiting ... for what , I'm not sure.  Over the years, I've heard "be patient" or "this can't go on forever, it will change soon", or even "good things come to those that wait". But how can this be for someone with a chronic incurable illness? What change is it that's coming and what am I patiently waiting for?  Yes, #chronicillness is about patience. Without patience, every appointment, meeting or treatment would be too daunting.  I know people mean well and are trying to help, but rather than give me advice on something they know little about, I'd prefer if they'd ask me what it's like to have a chronic incurable and possibly progressive illness. Because often I fear that I'm not waiting to be healed but rather experiencing the calm before the storm.  #chronicillness #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #spinalcordinjury #spoonie #spoonielife
215/366 Waiting .... Sometimes I feel like l'm waiting ... for what , I'm not sure. Over the years, I've heard "be patient" or "this can't go on forever, it will change soon", or even "good things come to those that wait". But how can this be for someone with a chronic incurable illness? What change is it that's coming and what am I patiently waiting for? Yes, #chronicillness  is about patience. Without patience, every appointment, meeting or treatment would be too daunting. I know people mean well and are trying to help, but rather than give me advice on something they know little about, I'd prefer if they'd ask me what it's like to have a chronic incurable and possibly progressive illness. Because often I fear that I'm not waiting to be healed but rather experiencing the calm before the storm. #chronicillness  #invisibleillness  #butyoudontlooksick  #nomoresurgeriesplease  #spinalcordinjury  #spoonie  #spoonielife 
214/366 just keep swimming  I really miss being able to swim.  Lately I've felt like jumping into a body of water and just swim away for a while). I crave to feel the water rush over me; the world above me just slightly out of reach with no expectations or pretences.  Sometimes it's so hard to go through emotions that I need to, or feel what I need in order to cope without being judged by family and friends.  I have a mother who copes by ignoring things or reacting immediately to something to make it go away.  Problem is, #chronicillness doesn't work that way.  I'm not chronically depressed or suicidal so there is no harm in me taking my time to do this in my way. It's just hard for me to assert myself. #chronicillnessismorethanjusttheillness  #invisibleillness #butyoudontlooksick #spinalcordinjury #spoonielife #spoonie #nomoresurgeriesplease #justkeepswimming
214/366 just keep swimming I really miss being able to swim. Lately I've felt like jumping into a body of water and just swim away for a while). I crave to feel the water rush over me; the world above me just slightly out of reach with no expectations or pretences. Sometimes it's so hard to go through emotions that I need to, or feel what I need in order to cope without being judged by family and friends. I have a mother who copes by ignoring things or reacting immediately to something to make it go away. Problem is, #chronicillness  doesn't work that way. I'm not chronically depressed or suicidal so there is no harm in me taking my time to do this in my way. It's just hard for me to assert myself. #chronicillnessismorethanjusttheillness  #invisibleillness  #butyoudontlooksick  #spinalcordinjury  #spoonielife  #spoonie  #nomoresurgeriesplease  #justkeepswimming 
Two trips to the ER and one stop in the OR over the last 36 hours. I feel like I'm falling apart. #kidneystonesaretheworst #worsethanlabor #nomoresurgeriesplease
207 this was the first blimp Imogene the year so I took a picture. Lately my hands have been shaking (due to meds, tiredness spinal issues who knows), so my pictures are taken quickly. So It wasn't until I was reviewing them on my phone that I noticed the leaf/petal eating bug hiding in the shadows. #invisibleillness  #butyoudontlooksick #invisibleillness #nomoresurgeriesplease #sickandtiredofbeingsickandtired #spoonie #spoonielife
206/366 I've always found being near a body of water to be calming.  I've always dreamed of living oceanside. Maybe someday I'll get there.  #maybesomeday #tryingtobepatient #tryingtobepositive #tryingtobepositivebutfailing #invisibleillness #butyoudontlooksick #spoonie #spoonies #nomoresurgeriesplease
204/366 what do you do when your hour long MRI requires you to take every thing off except undies and socks (in exchange for a one size does not fit all gown)? You wear some funky socks (even if they have lemons on them instead of lemonade). It may not make sense to some  because I can't see my feet during the scan but, the socks make me smile nonetheless.  Hey, at least I didn't wear my skull socks. ** note, despite what it may look like, I do not have giant size feet.  #nomoresurgeriesplease #butyoudontlooksick #invisibleillness #tryingtobepatient #spoonielife #sockfetish #spoonie
204/366 what do you do when your hour long MRI requires you to take every thing off except undies and socks (in exchange for a one size does not fit all gown)? You wear some funky socks (even if they have lemons on them instead of lemonade). It may not make sense to some because I can't see my feet during the scan but, the socks make me smile nonetheless. Hey, at least I didn't wear my skull socks. ** note, despite what it may look like, I do not have giant size feet. #nomoresurgeriesplease  #butyoudontlooksick  #invisibleillness  #tryingtobepatient  #spoonielife  #sockfetish  #spoonie 
203/366 This is often what i look  like when I'm meeting medical specialists for the first time (or the 50th for some Drs.). I'm often so afraid of what they're about to tell me and/or ask me that  I'll forget the names of the nurse or intern that first greets me. Not because they don't matter, but because the fear is mind numbing.  It's like a cliff hanger to a favourite drama,  I get tunnel vision and all I can think about is the reveal.  Anything else around me sounds like Charlie Brown's teacher.  In those moments I remind myself how lucky we are to live in the country with access to good medical care. For there Is no doubt  that if I was born in a war torn or third world country, I'd be dead by now or severely incapacitated a long time ago.  So in that moment as I wait for the reveal, despite the lump in my throat and my heart beating audibly in my ears, I have to believe in a better and healthier tomorrow.  #chronicillness #butyoudontlooksick #nomoresurgeriesplease #tryingtobepositive #tryingtobepatient #spoonie
203/366 This is often what i look like when I'm meeting medical specialists for the first time (or the 50th for some Drs.). I'm often so afraid of what they're about to tell me and/or ask me that I'll forget the names of the nurse or intern that first greets me. Not because they don't matter, but because the fear is mind numbing. It's like a cliff hanger to a favourite drama, I get tunnel vision and all I can think about is the reveal. Anything else around me sounds like Charlie Brown's teacher. In those moments I remind myself how lucky we are to live in the country with access to good medical care. For there Is no doubt that if I was born in a war torn or third world country, I'd be dead by now or severely incapacitated a long time ago. So in that moment as I wait for the reveal, despite the lump in my throat and my heart beating audibly in my ears, I have to believe in a better and healthier tomorrow. #chronicillness  #butyoudontlooksick  #nomoresurgeriesplease  #tryingtobepositive  #tryingtobepatient  #spoonie