#NoMoreSurgeriesPlease medias

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"You'll never convince me there is a hopeless situation or there is any finality in any success or any failure" -Carlos Ghosn-  I always try to stay alert as possible because life and your health can change for the better or for the worse in a heartbeat. #takecareofpeoplethattakecareofyou #wrightwaytraining #npc #npctexas #bodybuilding #quadsgymtexas #ifbb #superheavyweight #nomoresurgeriesplease #stayinghealthythisyear #havingfundoingit
It sure has... ready for 2017 to bring me nothing but happiness, as I truly cannot take any more of the sad.  #nomoreheartache #promisetolovemyself #promisetomychildren #infantloss #VivienneGray #mychicken #mymaxo #healing #recovery #nomoresurgeriesplease #rainbowsandmotherfuckinsunshine
Sounds good to me πŸ˜˜πŸ™ #DoneWith2016 #positivity #NoMoreSurgeriesPlease #Happiness
It's been 5 years today since my last surgery πŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»This photo was taken a few days after I got discharged. My amazing brother flew across the country to come take care of me. I don't know what I would have done without him. I was so weak I needed a nap after just walking from the car down to the beach. The man has so much patience. This photo reminds me of how far I have come since my diagnosis and restores hope that even though I'm not in remission, maybe the worst of my #crohns battle is over #invisibleillness #nomoresurgeriesplease #positivity #crohnswarrior #crohnsdisease #loweringstress #healthierself #bringon2017 #healthy #crohnsfit #crohnie #crohnsawareness #shoutouttoallthebrothers #thankful #family #brotherlove #suninoureyes #beachfun #citybeach #perth
It's been 5 years today since my last surgery πŸ™ŒπŸ»πŸ™ŒπŸ»πŸ™ŒπŸ»This photo was taken a few days after I got discharged. My amazing brother flew across the country to come take care of me. I don't know what I would have done without him. I was so weak I needed a nap after just walking from the car down to the beach. The man has so much patience. This photo reminds me of how far I have come since my diagnosis and restores hope that even though I'm not in remission, maybe the worst of my #crohns  battle is over #invisibleillness  #nomoresurgeriesplease  #positivity  #crohnswarrior  #crohnsdisease  #loweringstress  #healthierself  #bringon2017  #healthy  #crohnsfit  #crohnie  #crohnsawareness  #shoutouttoallthebrothers  #thankful  #family  #brotherlove  #suninoureyes  #beachfun  #citybeach  #perth 
Just got off work and look whose back home after her first surgery. She took it like a champπŸ’ͺ🏼. I'm glad everything came out okay.  #shesachamp#littlesister#roadtorecovery#nomoresurgeriesplease#likemotherlikedaughter#imthecaretaker#yuma#yumaaz
Ahhhh so good to be able to get back here again.... Starting slowly but surely!!!! #SVT #postablation #svtnomore #timeforahealthyseason #nomoresurgeriesplease
She's finally home and resting after her surgery this week. So we are watching Halloween movies on this Saturday night.πŸŽƒπŸ‘»πŸ“Ί #saturdaynight#roadtorecovery#nomoresurgeriesplease#momanddaughter#halloweenmovies#halloween#yuma#yumaaz
It's nice when your adventure partner is able to adventure again. #nomoresurgeriesplease
Sleeping in Mommy and Daddy's bed by himself because mommy has to sleep sitting up on the couch tonight.  #HeNeedsAHaircut #NoMoreSurgeriesPlease
I'm pretty sure after surgery this view is the best medicine. The nature of our own yard. Surgery went well although I am starting to feel very sore and discomfort man I know it will be worth it! Plus I have mom and dad this weekend to care for me and tonight I have one sexy care giver. That hottie husband of mine does a dang good job!! I'm just a survivor in love!! #soulmate #healing #myforever #nomoresurgeriesplease
I'm pretty sure after surgery this view is the best medicine. The nature of our own yard. Surgery went well although I am starting to feel very sore and discomfort man I know it will be worth it! Plus I have mom and dad this weekend to care for me and tonight I have one sexy care giver. That hottie husband of mine does a dang good job!! I'm just a survivor in love!! #soulmate  #healing  #myforever  #nomoresurgeriesplease 
one leg down, the other leg and arm to go in October πŸŽƒπŸ’§πŸƒπŸ #nomoresurgeriesplease
one leg down, the other leg and arm to go in October πŸŽƒπŸ’§πŸƒπŸ #nomoresurgeriesplease 
220/366 the plan was to plant a small veggie garden this year. However, I just haven't been up to it but I did manage to help the neighbour eat numerous tomatoes. "Winner winner m, tomato dinner!" ... or something like that.  #chronicpain #chronicillness #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #spinalcordinjury #spoonielife #spoonie #tiredofbeingsick
219/366 ... but time and chance happen to them all. - Ecclesiastes 9:11  #brokenandwhole #tryingtobepositive #nomoresurgeriesplease #spinalcordinjury #tiredaf #spoonie #spoonielife
The whole is greater than the sum of its parts - Aristotle  When I first pondered this quote in university, I interpreted it as: Separate elements may have meaning of their own. Put them all together however, these meanings can change and form a single, completely new (greater) one.  So although the we see a person's hair, skins, eyes etc, we also see a human being.  But what happens when some of our parts are broken while others keep braking? Do we see ourselves and others as less of a human being?  The journey of living with a chronic illness is different for everyone. For me the last two years have been the hardest. I'm just not bouncing back as quickly as I used to. I have drive and the will to find the positives but I've lost the fire in my belly .... I'm physically broken and just so incredibly exhausted. I keep hoping that sleep will help re-energize me but it's the kind of exhaustion that runs so deep, no amount of sleep with satiate. It's like having permanent flu symptoms.  I think for the first time in 10 years, I see myself as a physically broken human being... and I don't like it.  #brokenandwhole #brokenandbeautiful #chronicillness #chronicpain #spinalcordinjury #nomoresurgeriesplease #tryingtobepositive #spoonie #spoonielife
The whole is greater than the sum of its parts - Aristotle When I first pondered this quote in university, I interpreted it as: Separate elements may have meaning of their own. Put them all together however, these meanings can change and form a single, completely new (greater) one. So although the we see a person's hair, skins, eyes etc, we also see a human being. But what happens when some of our parts are broken while others keep braking? Do we see ourselves and others as less of a human being? The journey of living with a chronic illness is different for everyone. For me the last two years have been the hardest. I'm just not bouncing back as quickly as I used to. I have drive and the will to find the positives but I've lost the fire in my belly .... I'm physically broken and just so incredibly exhausted. I keep hoping that sleep will help re-energize me but it's the kind of exhaustion that runs so deep, no amount of sleep with satiate. It's like having permanent flu symptoms. I think for the first time in 10 years, I see myself as a physically broken human being... and I don't like it. #brokenandwhole  #brokenandbeautiful  #chronicillness  #chronicpain  #spinalcordinjury  #nomoresurgeriesplease  #tryingtobepositive  #spoonie  #spoonielife 
217/366 I could really use a win.  I've had a string of really crapy set backs lately. The last 10 years of coping with my failing health are taking a toll. I'm tried of the fight .... I'm not sure how I'm doing but I'll keep fighting.... it's just ... I could really use a win.  #couldreallyuseawin #chronicpain #tiredofbeingsick #chronicillness #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #sickandtiredofbeingsickandtired #tryingtobepositive #spoonie #spoonielife
217/366 I could really use a win. I've had a string of really crapy set backs lately. The last 10 years of coping with my failing health are taking a toll. I'm tried of the fight .... I'm not sure how I'm doing but I'll keep fighting.... it's just ... I could really use a win. #couldreallyuseawin  #chronicpain  #tiredofbeingsick  #chronicillness  #invisibleillness  #butyoudontlooksick  #nomoresurgeriesplease  #sickandtiredofbeingsickandtired  #tryingtobepositive  #spoonie  #spoonielife 
Oh, you know... Just checking that my arteries are still staying open. πŸ˜’πŸ˜’πŸ˜’ #nomoresurgeriesplease #medianarcuateligamentsyndrome
215/366 Waiting .... Sometimes I feel like l'm waiting ... for what , I'm not sure.  Over the years, I've heard "be patient" or "this can't go on forever, it will change soon", or even "good things come to those that wait". But how can this be for someone with a chronic incurable illness? What change is it that's coming and what am I patiently waiting for?  Yes, #chronicillness is about patience. Without patience, every appointment, meeting or treatment would be too daunting.  I know people mean well and are trying to help, but rather than give me advice on something they know little about, I'd prefer if they'd ask me what it's like to have a chronic incurable and possibly progressive illness. Because often I fear that I'm not waiting to be healed but rather experiencing the calm before the storm.  #chronicillness #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #spinalcordinjury #spoonie #spoonielife
215/366 Waiting .... Sometimes I feel like l'm waiting ... for what , I'm not sure. Over the years, I've heard "be patient" or "this can't go on forever, it will change soon", or even "good things come to those that wait". But how can this be for someone with a chronic incurable illness? What change is it that's coming and what am I patiently waiting for? Yes, #chronicillness  is about patience. Without patience, every appointment, meeting or treatment would be too daunting. I know people mean well and are trying to help, but rather than give me advice on something they know little about, I'd prefer if they'd ask me what it's like to have a chronic incurable and possibly progressive illness. Because often I fear that I'm not waiting to be healed but rather experiencing the calm before the storm. #chronicillness  #invisibleillness  #butyoudontlooksick  #nomoresurgeriesplease  #spinalcordinjury  #spoonie  #spoonielife 
214/366 just keep swimming  I really miss being able to swim.  Lately I've felt like jumping into a body of water and just swim away for a while). I crave to feel the water rush over me; the world above me just slightly out of reach with no expectations or pretences.  Sometimes it's so hard to go through emotions that I need to, or feel what I need in order to cope without being judged by family and friends.  I have a mother who copes by ignoring things or reacting immediately to something to make it go away.  Problem is, #chronicillness doesn't work that way.  I'm not chronically depressed or suicidal so there is no harm in me taking my time to do this in my way. It's just hard for me to assert myself. #chronicillnessismorethanjusttheillness  #invisibleillness #butyoudontlooksick #spinalcordinjury #spoonielife #spoonie #nomoresurgeriesplease #justkeepswimming
214/366 just keep swimming I really miss being able to swim. Lately I've felt like jumping into a body of water and just swim away for a while). I crave to feel the water rush over me; the world above me just slightly out of reach with no expectations or pretences. Sometimes it's so hard to go through emotions that I need to, or feel what I need in order to cope without being judged by family and friends. I have a mother who copes by ignoring things or reacting immediately to something to make it go away. Problem is, #chronicillness  doesn't work that way. I'm not chronically depressed or suicidal so there is no harm in me taking my time to do this in my way. It's just hard for me to assert myself. #chronicillnessismorethanjusttheillness  #invisibleillness  #butyoudontlooksick  #spinalcordinjury  #spoonielife  #spoonie  #nomoresurgeriesplease  #justkeepswimming 
207 this was the first blimp Imogene the year so I took a picture. Lately my hands have been shaking (due to meds, tiredness spinal issues who knows), so my pictures are taken quickly. So It wasn't until I was reviewing them on my phone that I noticed the leaf/petal eating bug hiding in the shadows. #invisibleillness  #butyoudontlooksick #invisibleillness #nomoresurgeriesplease #sickandtiredofbeingsickandtired #spoonie #spoonielife
206/366 I've always found being near a body of water to be calming.  I've always dreamed of living oceanside. Maybe someday I'll get there.  #maybesomeday #tryingtobepatient #tryingtobepositive #tryingtobepositivebutfailing #invisibleillness #butyoudontlooksick #spoonie #spoonies #nomoresurgeriesplease
204/366 what do you do when your hour long MRI requires you to take every thing off except undies and socks (in exchange for a one size does not fit all gown)? You wear some funky socks (even if they have lemons on them instead of lemonade). It may not make sense to some  because I can't see my feet during the scan but, the socks make me smile nonetheless.  Hey, at least I didn't wear my skull socks. ** note, despite what it may look like, I do not have giant size feet.  #nomoresurgeriesplease #butyoudontlooksick #invisibleillness #tryingtobepatient #spoonielife #sockfetish #spoonie
204/366 what do you do when your hour long MRI requires you to take every thing off except undies and socks (in exchange for a one size does not fit all gown)? You wear some funky socks (even if they have lemons on them instead of lemonade). It may not make sense to some because I can't see my feet during the scan but, the socks make me smile nonetheless. Hey, at least I didn't wear my skull socks. ** note, despite what it may look like, I do not have giant size feet. #nomoresurgeriesplease  #butyoudontlooksick  #invisibleillness  #tryingtobepatient  #spoonielife  #sockfetish  #spoonie 
203/366 This is often what i look  like when I'm meeting medical specialists for the first time (or the 50th for some Drs.). I'm often so afraid of what they're about to tell me and/or ask me that  I'll forget the names of the nurse or intern that first greets me. Not because they don't matter, but because the fear is mind numbing.  It's like a cliff hanger to a favourite drama,  I get tunnel vision and all I can think about is the reveal.  Anything else around me sounds like Charlie Brown's teacher.  In those moments I remind myself how lucky we are to live in the country with access to good medical care. For there Is no doubt  that if I was born in a war torn or third world country, I'd be dead by now or severely incapacitated a long time ago.  So in that moment as I wait for the reveal, despite the lump in my throat and my heart beating audibly in my ears, I have to believe in a better and healthier tomorrow.  #chronicillness #butyoudontlooksick #nomoresurgeriesplease #tryingtobepositive #tryingtobepatient #spoonie
203/366 This is often what i look like when I'm meeting medical specialists for the first time (or the 50th for some Drs.). I'm often so afraid of what they're about to tell me and/or ask me that I'll forget the names of the nurse or intern that first greets me. Not because they don't matter, but because the fear is mind numbing. It's like a cliff hanger to a favourite drama, I get tunnel vision and all I can think about is the reveal. Anything else around me sounds like Charlie Brown's teacher. In those moments I remind myself how lucky we are to live in the country with access to good medical care. For there Is no doubt that if I was born in a war torn or third world country, I'd be dead by now or severely incapacitated a long time ago. So in that moment as I wait for the reveal, despite the lump in my throat and my heart beating audibly in my ears, I have to believe in a better and healthier tomorrow. #chronicillness  #butyoudontlooksick  #nomoresurgeriesplease  #tryingtobepositive  #tryingtobepatient  #spoonie 
202/366 today I was reminded that fall is just around the corner. I love fall. If I could live in the permanent season of fall I would.  This leaf also reminded me that time just keeps going, even when you need a time out or a moment to catch your breath, time keeps ticking away.  If someone would have told me that I'd still be struggling to get my body and health  back, I would have set out to prove them wrong. Cuz, how dare they! But here I am, with fall just around the corner.  I love the colours, warm sweaters, fluffy socks and pumpkin spiced lattes of fall. The burst of fall colours are like a last hurrah before the leaves fall and winter blankets everything.  Our winter are harsh, cold and filled with greys and whites. So you can't blame us if we forget the resilient life that lays underneath, growing and  getting stronger everyday just waiting to burst forward in all it's glorious colour come spring.  I love fall.  #chronicpain #chronicillness #butyoudontlooksick #invisibleillness #spoonie #spoonielife #tryingtobepatient #beforeyouknowit #tiredofbeingsick #nomoresurgeriesplease
202/366 today I was reminded that fall is just around the corner. I love fall. If I could live in the permanent season of fall I would. This leaf also reminded me that time just keeps going, even when you need a time out or a moment to catch your breath, time keeps ticking away. If someone would have told me that I'd still be struggling to get my body and health back, I would have set out to prove them wrong. Cuz, how dare they! But here I am, with fall just around the corner. I love the colours, warm sweaters, fluffy socks and pumpkin spiced lattes of fall. The burst of fall colours are like a last hurrah before the leaves fall and winter blankets everything. Our winter are harsh, cold and filled with greys and whites. So you can't blame us if we forget the resilient life that lays underneath, growing and getting stronger everyday just waiting to burst forward in all it's glorious colour come spring. I love fall. #chronicpain  #chronicillness  #butyoudontlooksick  #invisibleillness  #spoonie  #spoonielife  #tryingtobepatient  #beforeyouknowit  #tiredofbeingsick  #nomoresurgeriesplease 
201/366 after what felt like a summer long heatwave (199F/38C), it finally rained. And it was perfect, because for weeks now I've felt this heatwave internally and have been bottling it up, which only made me restless.  Restless because there's been so much uncertainty for me lately and in my attempt to not let it overcome me I've bottled it up, which made me feel like the not so "calm before the storm". So today as the temperature dropped and my body settled down, I closed my eyes and just listen to the rain.  #herecomestherain #onedayatatime #tryingtobepatient #selfcompassion #bestill #chronicillness #chronicpain #nomoresurgeriesplease #spoonie #spoonielife
201/366 after what felt like a summer long heatwave (199F/38C), it finally rained. And it was perfect, because for weeks now I've felt this heatwave internally and have been bottling it up, which only made me restless. Restless because there's been so much uncertainty for me lately and in my attempt to not let it overcome me I've bottled it up, which made me feel like the not so "calm before the storm". So today as the temperature dropped and my body settled down, I closed my eyes and just listen to the rain. #herecomestherain  #onedayatatime  #tryingtobepatient  #selfcompassion  #bestill  #chronicillness  #chronicpain  #nomoresurgeriesplease  #spoonie  #spoonielife 
200/366 it's almost time for another MRI and I can feel the scanxiety creeping into my heart and mind.  There's a huge demand for these scans so machines work round the clock. I've been schedule for appointments in the wee hours of the morning before it get busy in the waiting rooms. It's weird and almost like I'm a part of some secret club with secret privileges. But there have been times where i feel uneasy, like I'm part of a scary movie. Either way, I still get anxious each and every time.  #scanxiety #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #chronicpain #chronicillness #spinalcordsurgeries #nomoresurgeriesplease #spoonie #spoonielife
200/366 it's almost time for another MRI and I can feel the scanxiety creeping into my heart and mind. There's a huge demand for these scans so machines work round the clock. I've been schedule for appointments in the wee hours of the morning before it get busy in the waiting rooms. It's weird and almost like I'm a part of some secret club with secret privileges. But there have been times where i feel uneasy, like I'm part of a scary movie. Either way, I still get anxious each and every time. #scanxiety  #invisibleillness  #butyoudontlooksick  #nomoresurgeriesplease  #chronicpain  #chronicillness  #spinalcordsurgeries  #nomoresurgeriesplease  #spoonie  #spoonielife 
199/266 we're in the midst of a heat wave so I've been staying indoors trying to stay cool.  My body just doesn't do well in the humidity. Needless to say, my fan is now my BFF.  Each summer for as long as I can remember, I've seen humming in my back yard. This year a neighbour gifted me this feeder so l couldn't wait to hang it. Im sure you see where I'm going with this.... Since I've hung it, I have yet to see a hummingbird in the area. So if you're taking notes, they don't like feeders and cameras πŸ˜•  #ifyoubuildittheywontcome #invisibleillness #chronicpain #chronicillness #nomoresurgeriesplease #tiredofbeingsick #tryingtobepatient #spoonieproblems #spoonie
199/266 we're in the midst of a heat wave so I've been staying indoors trying to stay cool. My body just doesn't do well in the humidity. Needless to say, my fan is now my BFF. Each summer for as long as I can remember, I've seen humming in my back yard. This year a neighbour gifted me this feeder so l couldn't wait to hang it. Im sure you see where I'm going with this.... Since I've hung it, I have yet to see a hummingbird in the area. So if you're taking notes, they don't like feeders and cameras πŸ˜• #ifyoubuildittheywontcome  #invisibleillness  #chronicpain  #chronicillness  #nomoresurgeriesplease  #tiredofbeingsick  #tryingtobepatient  #spoonieproblems  #spoonie 
195/366 spend a couple hours at a picnic ground today. Unfortunately, the water wasn't looking too inviting.  I love the water, so this just made me wish I was somewhere along the Pacific πŸ πŸ³πŸ¬πŸ„πŸΎπŸŠπŸΎπŸš£πŸΎ I dream of visiting Hawaii, the GalΓ‘pagos Islands and the Maldives to  swim, snorkel, scuba dive and learn to paddle board. Oh and maybe check out a few sharks (from the safety of a floating cage) Hopefully, I'll get there someday. (I just have to make sure I limit my shark week viewing before I go 😱) #agirlcandream #dreamingoftheocean #chronicillness #butyoudontlooksick #nomoresurgeriesplease #tryingtobepositive #tryingtobepatient #goodthingscometothosewhowait #spoonie #spoonielife
195/366 spend a couple hours at a picnic ground today. Unfortunately, the water wasn't looking too inviting. I love the water, so this just made me wish I was somewhere along the Pacific πŸ πŸ³πŸ¬πŸ„πŸΎπŸŠπŸΎπŸš£πŸΎ I dream of visiting Hawaii, the GalΓ‘pagos Islands and the Maldives to swim, snorkel, scuba dive and learn to paddle board. Oh and maybe check out a few sharks (from the safety of a floating cage) Hopefully, I'll get there someday. (I just have to make sure I limit my shark week viewing before I go 😱) #agirlcandream  #dreamingoftheocean  #chronicillness  #butyoudontlooksick  #nomoresurgeriesplease  #tryingtobepositive  #tryingtobepatient  #goodthingscometothosewhowait  #spoonie  #spoonielife 
194/366 Ride or Die? There's a comfort in knowing that people have your back … no matter what. But as a person dealing with a permanent constant companion aka chronic illness I have a lot of guilt when comes to asking some one to stand by/with me. It's crappy so why ask someone to share it?  Also, if I were to "ride" , I'd have to make sure that my pits stops included tune-ups for my physical self as well as our ride.  Maybe this "ride or die" thing is better left to someone else.  #rideordiechick #rideordie #chronicillness #chronicpain #chronicwarrior #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #spoonies #spoonieproblems
194/366 Ride or Die? There's a comfort in knowing that people have your back … no matter what. But as a person dealing with a permanent constant companion aka chronic illness I have a lot of guilt when comes to asking some one to stand by/with me. It's crappy so why ask someone to share it? Also, if I were to "ride" , I'd have to make sure that my pits stops included tune-ups for my physical self as well as our ride. Maybe this "ride or die" thing is better left to someone else. #rideordiechick  #rideordie  #chronicillness  #chronicpain  #chronicwarrior  #invisibleillness  #butyoudontlooksick  #nomoresurgeriesplease  #spoonies  #spoonieproblems 
193/366 found this light-up ring while looking for something else. I'm not sure how it got here but it reminds me of 80's cartoons where rings were a symbol of secret powers. The person would put it on, raise their fist in the air and watch the sparks fly as the superpower embodied  the person. Safety, security, happiness , love resorted and evil banished as the show concluded.  If you could, would you want a superpower or would you rather experience the challenges of life and embrace the journey and all that comes with it, good or bad?  #superpowers #wouldyourather #invisibleillness #imonlyhuman #spoonielife #spoonieproblems #butyoudontlooksick #nomoresurgeriesplease #tryingtobepositive #tryingtobepositivebutfailing
193/366 found this light-up ring while looking for something else. I'm not sure how it got here but it reminds me of 80's cartoons where rings were a symbol of secret powers. The person would put it on, raise their fist in the air and watch the sparks fly as the superpower embodied the person. Safety, security, happiness , love resorted and evil banished as the show concluded. If you could, would you want a superpower or would you rather experience the challenges of life and embrace the journey and all that comes with it, good or bad? #superpowers  #wouldyourather  #invisibleillness  #imonlyhuman  #spoonielife  #spoonieproblems  #butyoudontlooksick  #nomoresurgeriesplease  #tryingtobepositive  #tryingtobepositivebutfailing 
192/366  Lately, I've spend more time in waiting rooms than I have sleeping (or anything else for that matter). I'm grateful to have these specialists overseeing my care but sometimes it feels like too much to process.  Trying to remember all my concerns  have been difficult lately as so much is going on. So it's not surprising that I forgot to mention a really important symptom at one of my annual appointments. I feel bad taking up the nurses time to deal with my forgetful a$$. Feeling stupid but trying to remember I'm human ... besides even superheroes drop the ball sometimes ...... right?  #imonlyhuman #invisibleillness #butyoudontlooksick #chronicillness #chronicpain #spinalcordsurgeries #spoonies #spoonieproblems #spoonielife #nomoresurgeriesplease
192/366 Lately, I've spend more time in waiting rooms than I have sleeping (or anything else for that matter). I'm grateful to have these specialists overseeing my care but sometimes it feels like too much to process. Trying to remember all my concerns have been difficult lately as so much is going on. So it's not surprising that I forgot to mention a really important symptom at one of my annual appointments. I feel bad taking up the nurses time to deal with my forgetful a$$. Feeling stupid but trying to remember I'm human ... besides even superheroes drop the ball sometimes ...... right? #imonlyhuman  #invisibleillness  #butyoudontlooksick  #chronicillness  #chronicpain  #spinalcordsurgeries  #spoonies  #spoonieproblems  #spoonielife  #nomoresurgeriesplease 
189/366 - kickin' it old school.  Impromptu BBQ like a somewhat normal person. I got tired half way through but at least I tried.  #spoonielife #spoonie #nomoresurgeriesplease #butyoudontlooksick #invisibleillness #chronicpain #chronicillness #tryingtobepositive #tryingtobepatient
188/366 another cloud shot. This time it's to celebrate the fact that today is a better day a N's I was able to sit outside for a little bit. Definitely not as long as I wanted but I'll take what I can get. Here's to some natural vitamin D and a hopefully a slight tan to bring some color back to my face.  #sundayfunday #invisibleillness #butyoudontlooksick #nomoresurgeriesplease #spoonie #spoonielife #lazysunday
187/366 I miss her … that gal who'd drive by a forest and wonder if a hiking trail was hidden deep inside. That girl who'd check the city maps just to see if she discovered a new path.  She's gone; maybe forever. But I still feel her deep within. Her energy is depleted, her voice is tiny, almost inaudible … but I still feel her.  Maybe, if I'm lucky she'll be re-energized and find her voice, then find her way back to me … even if she's not quiet what she was before.  #brokenbuttrying #brokenbutwhole #chronicillness #chronicpain #chronicwarrior #butyoudontlooksick #invisibleillness #nomoresurgeriesplease #spoonielife #spoonie
187/366 I miss her … that gal who'd drive by a forest and wonder if a hiking trail was hidden deep inside. That girl who'd check the city maps just to see if she discovered a new path. She's gone; maybe forever. But I still feel her deep within. Her energy is depleted, her voice is tiny, almost inaudible … but I still feel her. Maybe, if I'm lucky she'll be re-energized and find her voice, then find her way back to me … even if she's not quiet what she was before. #brokenbuttrying  #brokenbutwhole  #chronicillness  #chronicpain  #chronicwarrior  #butyoudontlooksick  #invisibleillness  #nomoresurgeriesplease  #spoonielife  #spoonie 
One of us has depression, the other one has post-cancer/chemo/adhesional vomitting/cramping episodes. Can you guess which one is which?  This day kinda sucks. #nomoresurgeriesplease #appendixcancer #pmpcancersurvivor #pmpcancer #mucinousadenocarcinoma #depression #thestruggleisreal